https://www.nimhd.nih.gov/resources/schare/
Jackson Heart Study (JHS):
- The JHS focuses on cardiovascular disease (CVD) causes among African Americans.
- With over 5,300 African American participants in Jackson, Mississippi, it’s one of the largest initiatives in this field.
- The dataset covers diverse domains relevant to CVD, including demographics, anthropometrics, medication usage, conditions (e.g., hypertension, diabetes), lipid profiles, biomarkers, genetics, and more.
ScHARe Data Ecosystem:
- This ecosystem merges JHS data with area-level SDoH variables.
- SDoH factors (like community resilience, socioeconomic status, and environmental conditions) play a crucial role in health outcomes.
- By incorporating these factors, your AI/ML models can account for biases and enhance fairness.
1. **Social determinants of health data**:
- URL: [Social Determinants of Health Data](https://healthdata.gov/dataset/social-determinants-health)
2. **Genomic data**:
- URL: [National Center for Biotechnology Information (NCBI)](https://www.ncbi.nlm.nih.gov/)
- URL: [Ensembl Genome Browser](https://www.ensembl.org/)
3. **Data on PTSD and burnout among clinicians**:
- URL: [National Institute of Mental Health (NIMH) Data Archive](https://nda.nih.gov/)
4. **Referral networks data**:
- This data may be more specific and proprietary, typically found through healthcare providers or specific research collaborations.
5. **Psychiatric patient data**:
- URL: [National Institute of Mental Health (NIMH) Data Archive](https://nda.nih.gov/)
6. **Health records**:
- URL: [HealthData.gov](https://www.healthdata.gov/)
- URL: [Centers for Medicare & Medicaid Services (CMS)](https://www.cms.gov/Research-Statistics-Data-and-Systems/Research-Statistics-Data-and-Systems)
7. **Clinical trial data**:
- URL: [ClinicalTrials.gov](https://clinicaltrials.gov/)
8. **Population health data**:
- URL: [World Health Organization (WHO) Global Health Observatory](https://www.who.int/data/gho)
- URL: [HealthData.gov](https://www.healthdata.gov/)
9. **Electronic health records**:
- Typically proprietary, but some de-identified data sets can be found at:
- URL: [MIMIC-III Clinical Database](https://mimic.physionet.org/)
10. **Survey data**:
- URL: [CDC Behavioral Risk Factor Surveillance System (BRFSS)](https://www.cdc.gov/brfss/index.html)
- URL: [National Health Interview Survey (NHIS)](https://www.cdc.gov/nchs/nhis/index.htm)
11. **Public health datasets**:
- URL: [HealthData.gov](https://www.healthdata.gov/)
- URL: [Centers for Disease Control and Prevention (CDC) Data and Statistics](https://www.cdc.gov/datastatistics/)
12. **Machine learning datasets**:
- URL: [UCI Machine Learning Repository](https://archive.ics.uci.edu/ml/index.php)
- URL: [Kaggle Datasets](https://www.kaggle.com/datasets)
13. **Biomedical data**:
- URL: [Bioinformatics.org](https://www.bioinformatics.org/)
- URL: [NIH Database of Genotypes and Phenotypes (dbGaP)](https://www.ncbi.nlm.nih.gov/gap)
14. **Hospital records**:
- Typically proprietary, but aggregated data can be found at:
- URL: [HealthData.gov](https://www.healthdata.gov/)
- URL: [American Hospital Association (AHA) Data](https://www.aha.org/data)
15. **Mental health data**:
- URL: [National Institute of Mental Health (NIMH) Data Archive](https://nda.nih.gov/)
16. **AI-generated data**:
- This data is typically generated within research projects or specific AI applications, but some examples can be found in open repositories:
- URL: [OpenAI](https://openai.com/)
- URL: [Hugging Face Datasets](https://huggingface.co/datasets)
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